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Gynaecological cancer (clinical) DSS (Data Set Specification)

Definition

The purpose of the Gynaecological cancer (clinical) data set specification (DSS) is to define data standards for the national collection of gynaecological cancer data so that data collected is consistent and reliable. The data set specification is not mandated for collection but is recommended as best practice if gynaecological cancer data is to be collected. It enables individual treatment centres or health service areas to develop collection methods and policies appropriate for their service.

The Gynaecological cancer (clinical) data set specification is used in conjunction with the Cancer (clinical) data set specification (CCDSS). The data elements with obligations described as mandatory or conditional for collection are recommended as best practice, while the data items described as optional are for collection at the discretion of the treating centre and may be contingent, for example, on the availability of resources.

The scope for the Gynaecological cancer (clinical) DSS is to collect comprehensive data encompassing the time a person is first referred for the investigation of symptoms and for the entire duration of their illness so that treatment and outcomes are captured.

The definitions used in this data set specification are designed to capture the provision of cancer care on a day-to-day level. They relate to the realities of cancer care and the need to optimise care by correctly diagnosing, evaluating and managing patients with gynaecological cancer.

The data elements specified provide a framework for:

  • providing a systematic foundation and promoting the delivery of evidence-based care to patients with gynaecological cancer
  • informing treatment guidelines and professional education
  • informing quality assurance
  • guiding resource planning and the evaluation of cancer control activities

Many of the data elements in this data set specification may also be used in the collection of data for other types of cancer.

This data set specification is primarily directed at the clinical and clinical epidemiological use of cancer data. Treatment centres such as hospitals, radiotherapy centres and cancer specialist practices are the settings in which implementation of the Gynaecological cancer (clinical) data set specification should be considered. The data set specification can also be used by a wider range of health and health-related establishments that create, use or maintain records on health-care clients.

Metadata items in this Data Set Specification

Below is a list of all the components within this Dataset Specification.
Each entry includes the item name, whether the item is optional, mandatory or conditional and the maximum times the item can occur in a dataset.
If the items must occur in a particular order in the dataset, the sequence number is included before the item name.

Components Statuses Inclusion #
Data Elements
0 Person with cancer—cytopathology result, code N
  • [Health: Standard]
mandatory 29
2 Person with cancer—location of lymphovascular invasion of cervix, code N
Conditional Obligation:This data element is only to be recorded for patients with cervical cancer, as indicated by Person with cancer—primary site of cancer, topography code (ICD-O-3) ANN.N, and when Person with cancer—lymphovascular invasion indicator, yes/no code N indicates the presence of lymphovascular invasion.
  • [Health: Standard]
conditional 5
3 Person with cancer—location of lymphovascular invasion of corpus uteri, code N
Conditional Obligation:This data element is only to be recorded for patients with endometrial cancer, as indicated by Person with cancer—primary site of cancer, topography code (ICD-O-3) ANN.N, and when Person with cancer—lymphovascular invasion indicator, yes/no code N indicates the presence of lymphovascular invasion.
  • [Health: Standard]
conditional 5
4 Person with cancer—extent of primary cancer, cervical cancer staging (FIGO) code N[N]
Conditional Obligation:This data element is only to be recorded for patients with cervical cancer, as indicated by Person with cancer—primary site of cancer, topography code (ICD-O-3) ANN.N.
  • [Health: Standard]
conditional 1
5 Person with cancer—extent of primary cancer, endometrial cancer staging (FIGO) code N[N]
Conditional Obligation:This data element is only to be recorded for patients with endometrial cancer, as indicated by Person with cancer—primary site of cancer, topography code (ICD-O-3) ANN.N.
  • [Health: Standard]
conditional 1
6 Person with cancer—extent of primary cancer, ovarian cancer staging (FIGO) code N[N]
Conditional Obligation:This data element is only to be recorded for patients with ovarian cancer, as indicated by Person with cancer—primary site of cancer, topography code (ICD-O-3) ANN.N.
  • [Health: Standard]
conditional 1
8 Person with cancer—distant metastatic site(s) at diagnosis, code N[N]
Conditional Obligation:This data element is to be completed if Person with cancer—distant metastatic cancer indicator, yes/no/not stated/inadequately described code N indicates the presence of metastatic cancer.
  • [Health: Standard]
conditional 20
13 Person with cancer—tumour size outside primary site, code N
  • [Health: Standard]
mandatory 1
15 Person with cancer—multiple primary tumours descriptor, code N
Conditional Obligation:This data element is to be recorded if Person with cancer—multiple primary tumours indicator, yes/no code N indicates the presence of multiple primary tumours.
  • [Health: Standard]
conditional 1
Data Element Inclusion #

References


This content Based on Australian Institute of Health and Welfare material. Attribution provided as required under the AIHW CC-BY licence.

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